The Hold me Tight Program for Couples Facing Huntington's Disease
- Publication type:
- Journal article
- Metadata:
-
- Autoren
- Tara M Petzke
- Mar Rodriguez-Girondo
- Lucienne B van der Meer
- Autoren-URL
- https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=fis-test-1&SrcAuth=WosAPI&KeyUT=WOS:000807901800010&DestLinkType=FullRecord&DestApp=WOS_CPL
- DOI
- 10.3233/JHD-210516
- eISSN
- 1879-6400
- Externe Identifier
- Clarivate Analytics Document Solution ID: 1Y1KA
- PubMed Identifier: 35466944
- ISSN
- 1879-6397
- Ausgabe der Veröffentlichung
- 2
- Zeitschrift
- JOURNAL OF HUNTINGTONS DISEASE
- Schlüsselwörter
- Huntington's disease
- hold me tight
- resilience
- psychological
- couples
- Paginierung
- 203 - 215
- Datum der Veröffentlichung
- 2022
- Status
- Published
- Titel
- The Hold me Tight Program for Couples Facing Huntington's Disease
- Sub types
- Article
- Ausgabe der Zeitschrift
- 11
Data source: Web of Science (Lite)
- Other metadata sources:
-
- Abstract
- <jats:p>Background: A positive predictive genetic test for Huntington’s disease (HD) can be a life-changing event for both carriers and their partners, leading to lower wellbeing and increasing the risk for separation and divorce. The ‘Hold me Tight’ program (HmT), based on emotionally focused couples’ therapy, aims at strengthening the couple bond by targeting attachment needs. Objective: This study investigates whether the HmT program helps couples strengthen their relationship, as an investment in a future where the disease will affect life in many ways. Methods: In a multiple baseline design using three baselines of varying length, 15 couples of presymptomatic HD-carriers and their partners were included. In three consecutive groups, couples underwent the intervention (an adapted version of the 8-session HmT program) in four weekly sessions and completed self-report questionnaires throughout the study period of 19 weeks (17 measurements). Attachment style was assessed at baseline, resilience at baseline and at the end of the follow-up, while relationship satisfaction and wellbeing were measured weekly. A multi-level model was applied to the data. Results: Over the course of the study, wellbeing and relationship satisfaction significantly improved; resilience, however, did not. Furthermore, all three outcome measures were moderated by attachment style, with more securely attached individuals showing better outcomes. Conclusion: HmT improved wellbeing and relationship satisfaction of couples facing HD. Due to these improvements and high patient acceptability rates, this program could become a standardized procedure in HD care. The program could be adapted for other populations, e.g., couples facing other genetic neurological disorders.</jats:p>
- Autoren
- Tara M Petzke
- Mar Rodriguez-Girondo
- Lucienne B van der Meer
- DOI
- 10.3233/jhd-210516
- eISSN
- 1879-6400
- ISSN
- 1879-6397
- Ausgabe der Veröffentlichung
- 2
- Zeitschrift
- Journal of Huntington's Disease
- Paginierung
- 203 - 215
- Datum der Veröffentlichung
- 2022
- Status
- Published
- Herausgeber
- IOS Press
- Herausgeber URL
- http://dx.doi.org/10.3233/jhd-210516
- Datum der Datenerfassung
- 2022
- Titel
- The Hold me Tight Program for Couples Facing Huntington’s Disease
- Ausgabe der Zeitschrift
- 11
Data source: Crossref
- Abstract
- <h4>Background</h4>A positive predictive genetic test for Huntington's disease (HD) can be a life-changing event for both carriers and their partners, leading to lower wellbeing and increasing the risk for separation and divorce. The 'Hold me Tight' program (HmT), based on emotionally focused couples' therapy, aims at strengthening the couple bond by targeting attachment needs.<h4>Objective</h4>This study investigates whether the HmT program helps couples strengthen their relationship, as an investment in a future where the disease will affect life in many ways.<h4>Methods</h4>In a multiple baseline design using three baselines of varying length, 15 couples of presymptomatic HD-carriers and their partners were included. In three consecutive groups, couples underwent the intervention (an adapted version of the 8-session HmT program) in four weekly sessions and completed self-report questionnaires throughout the study period of 19 weeks (17 measurements). Attachment style was assessed at baseline, resilience at baseline and at the end of the follow-up, while relationship satisfaction and wellbeing were measured weekly. A multi-level model was applied to the data.<h4>Results</h4>Over the course of the study, wellbeing and relationship satisfaction significantly improved; resilience, however, did not. Furthermore, all three outcome measures were moderated by attachment style, with more securely attached individuals showing better outcomes.<h4>Conclusion</h4>HmT improved wellbeing and relationship satisfaction of couples facing HD. Due to these improvements and high patient acceptability rates, this program could become a standardized procedure in HD care. The program could be adapted for other populations, e.g., couples facing other genetic neurological disorders.
- Addresses
- Department of Clinical Genetics, Leiden University Medical Centre, Leiden, The Netherlands.
- Autoren
- Tara M Petzke
- Mar Rodriguez-Girondo
- Lucienne B van der Meer
- DOI
- 10.3233/jhd-210516
- eISSN
- 1879-6400
- Externe Identifier
- PubMed Identifier: 35466944
- Open access
- false
- ISSN
- 1879-6397
- Ausgabe der Veröffentlichung
- 2
- Zeitschrift
- Journal of Huntington's disease
- Schlüsselwörter
- Humans
- Huntington Disease
- Personal Satisfaction
- Couples Therapy
- Surveys and Questionnaires
- Outcome Assessment, Health Care
- Sprache
- eng
- Medium
- Paginierung
- 203 - 215
- Datum der Veröffentlichung
- 2022
- Status
- Published
- Datum der Datenerfassung
- 2022
- Titel
- The Hold me Tight Program for Couples Facing Huntington's Disease.
- Sub types
- Research Support, Non-U.S. Gov't
- Journal Article
- Ausgabe der Zeitschrift
- 11
Data source: Europe PubMed Central
- Abstract
- BACKGROUND: A positive predictive genetic test for Huntington's disease (HD) can be a life-changing event for both carriers and their partners, leading to lower wellbeing and increasing the risk for separation and divorce. The 'Hold me Tight' program (HmT), based on emotionally focused couples' therapy, aims at strengthening the couple bond by targeting attachment needs. OBJECTIVE: This study investigates whether the HmT program helps couples strengthen their relationship, as an investment in a future where the disease will affect life in many ways. METHODS: In a multiple baseline design using three baselines of varying length, 15 couples of presymptomatic HD-carriers and their partners were included. In three consecutive groups, couples underwent the intervention (an adapted version of the 8-session HmT program) in four weekly sessions and completed self-report questionnaires throughout the study period of 19 weeks (17 measurements). Attachment style was assessed at baseline, resilience at baseline and at the end of the follow-up, while relationship satisfaction and wellbeing were measured weekly. A multi-level model was applied to the data. RESULTS: Over the course of the study, wellbeing and relationship satisfaction significantly improved; resilience, however, did not. Furthermore, all three outcome measures were moderated by attachment style, with more securely attached individuals showing better outcomes. CONCLUSION: HmT improved wellbeing and relationship satisfaction of couples facing HD. Due to these improvements and high patient acceptability rates, this program could become a standardized procedure in HD care. The program could be adapted for other populations, e.g., couples facing other genetic neurological disorders.
- Autoren
- Tara M Petzke
- Mar Rodriguez-Girondo
- Lucienne B van der Meer
- Autoren-URL
- https://www.ncbi.nlm.nih.gov/pubmed/35466944
- DOI
- 10.3233/JHD-210516
- eISSN
- 1879-6400
- Ausgabe der Veröffentlichung
- 2
- Zeitschrift
- J Huntingtons Dis
- Schlüsselwörter
- Huntington’s disease
- couples
- hold me tight
- psychological
- resilience
- Couples Therapy
- Humans
- Huntington Disease
- Outcome Assessment, Health Care
- Personal Satisfaction
- Surveys and Questionnaires
- Sprache
- eng
- Country
- Netherlands
- Paginierung
- 203 - 215
- PII
- JHD210516
- Datum der Veröffentlichung
- 2022
- Status
- Published
- Datum, an dem der Datensatz öffentlich gemacht wurde
- 2022
- Titel
- The Hold me Tight Program for Couples Facing Huntington's Disease.
- Sub types
- Journal Article
- Research Support, Non-U.S. Gov't
- Ausgabe der Zeitschrift
- 11
Data source: PubMed
- Abstract
- Background: A positive predictive genetic test for Huntington's disease (HD) can be a life-changing event for both carriers and their partners, leading to lower wellbeing and increasing the risk for separation and divorce. The 'Hold me Tight' program (HmT), based on emotionally focused couples' therapy, aims at strengthening the couple bond by targeting attachment needs. Objective: This study investigates whether the HmT program helps couples strengthen their relationship, as an investment in a future where the disease will affect life in many ways. Methods: In a multiple baseline design using three baselines of varying length, 15 couples of presymptomatic HD-carriers and their partners were included. In three consecutive groups, couples underwent the intervention (an adapted version of the 8-session HmT program) in four weekly sessions and completed self-report questionnaires throughout the study period of 19 weeks (17 measurements). Attachment style was assessed at baseline, resilience at baseline and at the end of the follow-up, while relationship satisfaction and wellbeing were measured weekly. A multi-level model was applied to the data. Results: Over the course of the study, wellbeing and relationship satisfaction significantly improved; resilience, however, did not. Furthermore, all three outcome measures were moderated by attachment style, with more securely attached individuals showing better outcomes. Conclusion: HmT improved wellbeing and relationship satisfaction of couples facing HD. Due to these improvements and high patient acceptability rates, this program could become a standardized procedure in HD care. The program could be adapted for other populations, e.g., couples facing other genetic neurological disorders.
- Autoren
- Tara Petzke
- Mar Rodriguez-Girondo
- Lucienne B van der Meer
- DOI
- 10.3233/JHD-210516
- ISSN
- 1879-6400
- Zeitschrift
- Journal of Huntington's Disease
- Schlüsselwörter
- Huntington's Disease
- couples
- Hold me Tight
- resilience
- Online publication date
- 2022
- Status
- Published online
- Herausgeber
- IOS Press
- Datum der Datenerfassung
- 2022
- Titel
- The Hold me Tight Program for Couples Facing Huntington's Disease
- Sub types
- Article
Data source: Manual
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