Assessment of the quality of end-of-life care: translation and validation of the German version of the “Care of the Dying Evaluation” (CODE-GER) - a questionnaire for bereaved relatives

Publikationstyp:
Zeitschriftenaufsatz
Metadaten:
Abstract
<jats:title>Abstract</jats:title><jats:sec> <jats:title>Background</jats:title> <jats:p>International studies indicate deficits in end-of-life care that can lead to distress for patients and their next-of-kin.</jats:p> <jats:p>The aim of the study was to translate and validate the “Care of the Dying Evaluation” (CODE) into German (CODE-GER).</jats:p> </jats:sec><jats:sec> <jats:title>Methods</jats:title> <jats:p>Translation according to EORTC (European Organisation for Research and Treatment of Cancer) guidelines was followed by data collection to evaluate psychometric properties of CODE-GER. Participants were next-of-kin of patients who had died an expected death in two hospitals. They were invited to participate at least eight, but not later than 16 weeks after the patient’s death. To calculate construct validity, the Palliative care Outcome Scale (POS) was assessed. Difficulty and perceived strain of answering the questionnaire were assessed by a numeric scale (0–10).</jats:p> </jats:sec><jats:sec> <jats:title>Results</jats:title> <jats:p>Out of 1137 next-of-kin eligible, 317 completed the questionnaire (response rate: 27.9%). Data from 237 main sample participants, 38 interraters and 55 next-of-kin who participated for repeated measurement were analysed. Overall internal consistency, α = 0.86, interrater reliability, ICC (1) = 0.79, and retest-reliability, ICC (1, 2) = 0.85, were good. Convergent validity between POS and CODE-GER, r = −.46, was satisfactory. A principal component analysis with varimax rotation showed a 7-factor solution. Difficulty, M = 2.2; SD ± 2.4, and perceived strain, M = 4.1; SD ± 3.0, of completing the questionnaire were rather low.</jats:p> </jats:sec><jats:sec> <jats:title>Conclusion</jats:title> <jats:p>The results from the present study confirm CODE-GER as a reliable and valid instrument to assess the quality of care of the dying person. More over our study adds value to the original questionnaire by proposing a deepened analysis of obtained data. The development of seven subscales increases its potential for further surveys and research.</jats:p> </jats:sec><jats:sec> <jats:title>Trial registration</jats:title> <jats:p>This study was registered retrospectively on the 25th of January 2018 at the German Clinical Trials Register (<jats:ext-link xmlns:xlink="http://www.w3.org/1999/xlink" ext-link-type="uri" xlink:href="https://www.drks.de/drks_web/navigate.do?navigationId=trial.HTML&amp;TRIAL_ID=DRKS00013916">DRKS00013916</jats:ext-link>).</jats:p> </jats:sec>
Autoren
  • Annika Vogt
  • Stephanie Stiel
  • Maria Heckel
  • Swantje Goebel
  • Sandra Stephanie Mai
  • Andreas Seifert
  • Christina Gerlach
  • Christoph Ostgathe
  • Martin Weber
DOI
10.1186/s12955-020-01473-2
eISSN
1477-7525
Ausgabe der Veröffentlichung
1
Zeitschrift
Health and Quality of Life Outcomes
Sprache
en
Artikelnummer
311
Online publication date
2020
Datum der Veröffentlichung
2020
Status
Published
Herausgeber
Springer Science and Business Media LLC
Herausgeber URL
http://dx.doi.org/10.1186/s12955-020-01473-2
Datum der Datenerfassung
2021
Titel
Assessment of the quality of end-of-life care: translation and validation of the German version of the “Care of the Dying Evaluation” (CODE-GER) - a questionnaire for bereaved relatives
Ausgabe der Zeitschrift
18

Datenquelle: Crossref

Andere Metadatenquellen:
Author's licence
CC-BY
Autoren
  • Annika Vogt
  • Stephanie Stiel
  • Maria Heckel
  • Swantje Goebel
  • Sandra Stephanie Mai
  • Andreas Seifert
  • Christina Gerlach
  • Christoph Ostgathe
  • Martin Weber
Hosting institution
Universitätsbibliothek Mainz
Sammlungen
  • JGU-Publikationen
Resource version
Published version
DOI
10.1186/s12955-020-01473-2
File(s) embargoed
false
Open access
true
ISSN
1477-7525
Zeitschrift
Health and quality of life outcomes
Schlüsselwörter
  • 610 Medizin
  • 610 Medical sciences
Sprache
eng
Open access status
Open Access
Paginierung
311
Datum der Veröffentlichung
2020
Public URL
https://openscience.ub.uni-mainz.de/handle/20.500.12030/5774
Herausgeber
BioMed Central
Herausgeber URL
https://doi.org/10.1186/s12955-020-01473-2
Datum der Datenerfassung
2021
Datum, an dem der Datensatz öffentlich gemacht wurde
2021
Zugang
Public
Titel
Assessment of the quality of end-of-life care : translation and validation of the German version of the “Care of the Dying Evaluation” (CODE-GER) : a questionnaire for bereaved relatives
Ausgabe der Zeitschrift
18

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vogt_annika-assessment_of_-20210420101456947.pdf

Datenquelle: OPENSCIENCE.UB

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